The Motor Neurone Disease (MND) Association is to be featured in a series of events in autumn, with the conferences, entitled Personalising Care - The Choices We Face, aiming to get the government's attention.
Tim Luckhurst, a professor of journalism at the University of Kent, will be chairing the biggest of them all: a round-table debate on the subject at the Liberal Democrat party conference in Bournemouth.
Affected by the disease when his father died of it in July, he described it as a "vile" condition.
Professor Luckhurst emphasised that his father detested what MND did to him and highlighted that without help and support of such institutions as the MND Association, his final months would have been intolerable.
He continued: "Sufferers and the people who care for them are not best served by a one-size-fits-all approach to healthcare. They need flexibility. I am proud to support the MND Association's efforts to raise these sensitive and important topics at the Lib Dem Conference."
The MND Association was formed in 1979 and operates a network of more than 95 branches and groups which provide local support while raising funds and awareness.
Please click here for advice to help you find the right type of care.